Our Big Adventure Part One
My how time has gotten away from me! It's been over a month and as the New Years approaches, I figured I would enticed Caden with the vibrating swing to put some updates on here before I forget them!
So, after trying the gas drops, Caden got very constipated and was an unhappy little boy- so we nixed those and put him back on straight formula to get things moving. As his two month appointment approached, I scheduled another visit with the lactation specialist during a time that daddy could also make it so he could hear what she had to say. It didn't seem like nursing was getting any better, and almost worse! With the last lactation appointment being a little out of the ordinary as far as him eating well went.
We got to the appointment and tried to get him to nurse. It seemed like what he was able to get out he let fall right out the other side of his mouth- after about 25 minutes, he was weighed and we were back to the wonderful 2cc of actual milk that he ended up with. Daddy fed him while Liz (the specialist) watched so she could see how he reacts when he is eating, and afterwards she told us that she would highly recommend that we see a speech therapist and/or a cardiologist. We didn't quite understand the cardiology, but the speech had to do with the way he was sucking and possibly trying to teach him to do it correctly- like the little exercises we had been told to try before. Liz called our pediatricians office while we were there and asked for their fax so that she could send them a letter describing what he was doing, her concerns and to instruct the doctor to watch him feed so she could see what he was doing. She also told hubby that he should make every attempt to come with me to see the doctor (who is really the nurse practitioner and NOT the doctor).
So, on the way home I texted Dr. Kera and she confirmed that if he is turning blue while eating he needed to see a cardiologist. The reason being that when babies are in the womb- the space between their left and right heart cavities is open. They are not breathing oxygen, so the blood doesn't follow the same path it does in adults (it goes to the lungs to get oxygen then back to the other side of the heart to be pumped through the body). When they are born, this hole should close when they take their first breath of air. If it doesn't close properly, then he would be having problems with un-oxygenated blood getting pumped through his body.
Daddy came to our appointment- all fired up and ready to go knowing that we were again seeing the nurse practitioner. She came in and evaluated him and told us again that he was a little on the smaller size but looked good. We asked about his eating (as dad was feeding him and he was having issues), and she said it seemed normal and he would probably grow out of it. After some aggressive words from dad about us talking with several others and the lactation specialist (whose letter was magically not to be found since they gave her the wrong fax #), we got her to agree to send us for a swallow study to evaluate what was happening with his swallowing and a cardiologist. She didn't really want to recommend either- but since we insisted, she did. We got the numbers and made the phone calls and had a cardiologist appointment for that week and a swallow study the following Friday.
Cardiology went well- with the exception of taking the electrodes off of Caden- that did not make him happy. The doctor said that the space between his heart was in fact not closed entirely- but it was in a normal range and it should be completely closed by eight months of age, so we made a follow up to have it redone and counted down the days to his swallow study....
So, after trying the gas drops, Caden got very constipated and was an unhappy little boy- so we nixed those and put him back on straight formula to get things moving. As his two month appointment approached, I scheduled another visit with the lactation specialist during a time that daddy could also make it so he could hear what she had to say. It didn't seem like nursing was getting any better, and almost worse! With the last lactation appointment being a little out of the ordinary as far as him eating well went.
We got to the appointment and tried to get him to nurse. It seemed like what he was able to get out he let fall right out the other side of his mouth- after about 25 minutes, he was weighed and we were back to the wonderful 2cc of actual milk that he ended up with. Daddy fed him while Liz (the specialist) watched so she could see how he reacts when he is eating, and afterwards she told us that she would highly recommend that we see a speech therapist and/or a cardiologist. We didn't quite understand the cardiology, but the speech had to do with the way he was sucking and possibly trying to teach him to do it correctly- like the little exercises we had been told to try before. Liz called our pediatricians office while we were there and asked for their fax so that she could send them a letter describing what he was doing, her concerns and to instruct the doctor to watch him feed so she could see what he was doing. She also told hubby that he should make every attempt to come with me to see the doctor (who is really the nurse practitioner and NOT the doctor).
So, on the way home I texted Dr. Kera and she confirmed that if he is turning blue while eating he needed to see a cardiologist. The reason being that when babies are in the womb- the space between their left and right heart cavities is open. They are not breathing oxygen, so the blood doesn't follow the same path it does in adults (it goes to the lungs to get oxygen then back to the other side of the heart to be pumped through the body). When they are born, this hole should close when they take their first breath of air. If it doesn't close properly, then he would be having problems with un-oxygenated blood getting pumped through his body.
Daddy came to our appointment- all fired up and ready to go knowing that we were again seeing the nurse practitioner. She came in and evaluated him and told us again that he was a little on the smaller size but looked good. We asked about his eating (as dad was feeding him and he was having issues), and she said it seemed normal and he would probably grow out of it. After some aggressive words from dad about us talking with several others and the lactation specialist (whose letter was magically not to be found since they gave her the wrong fax #), we got her to agree to send us for a swallow study to evaluate what was happening with his swallowing and a cardiologist. She didn't really want to recommend either- but since we insisted, she did. We got the numbers and made the phone calls and had a cardiologist appointment for that week and a swallow study the following Friday.
Cardiology went well- with the exception of taking the electrodes off of Caden- that did not make him happy. The doctor said that the space between his heart was in fact not closed entirely- but it was in a normal range and it should be completely closed by eight months of age, so we made a follow up to have it redone and counted down the days to his swallow study....
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